Psychological status of children with spinal cord injury and their primary caregivers with an analysis of its impact on family management of the diseacse
ZENG Xiaolei1, ZHAO Sufan1, LIN Baoli2, HUANG Xiaoxia3
1.Department of Pediatric Rehabilitation, the Second Affiliated Hospital & Yuying Children’s Hospital of Wenzhou Medical University, Wenzhou 325027, China; 2.Department of Joint Surgery, the Second Affiliated Hospital & Yuying Children’s Hospital of Wenzhou Medical University, Wenzhou 325027, China; 3.Department of Nephrology, the First Affiliated Hospital of Wenzhou Medical University, Wenzhou 325015, China
ZENG Xiaolei,ZHAO Sufan,LIN Baoli, et al. Psychological status of children with spinal cord injury and their primary caregivers with an analysis of its impact on family management of the diseacse[J]. JOURNAL OF WEZHOU MEDICAL UNIVERSITY, 2021, 51(9): 735-740.
Abstract：Objective: To investigate the psychological status of spinal cord injury (SCI) children and their primary caregivers to find out the influencing factors on family management of SCI. Methods: A total of 94 SCI children in the Second Affiliated Hospital & Yuying Children’s Hospital of Wenzhou Medical University from February 2015 to June 2020 were enrolled, and their anxiety and depression levels were respectively evaluated via SCARED (the screen for child anxiety related emotional disorders) and DSRSC (depression self-rating scale for children). Besides, questionnaires were also carried out on the primary caregivers of SCI children by using General Information Scale, Connor-Davidson resilience scale (CD-RISC), self-rating anxiety scale (SAS), self-rating depression scale (SDS) and family management measure (FaMM). Pearson correlation analysis and multiple linear regression analysis were made to explore the influencing factors of household management. Results: Both SCI children and their primary caregivers had significantly higher level of depression and anxiety than those in the domestic normative model (both P<0.05). In addition, the psychological resilience of primary caregivers was lower than the domestic normative model (P<0.001). The “daily living standards of children” in FaMM was influenced by anxiety level (β=-0.810, P<0.001) and depression level (β=-3.144, P=0.002) of children. “Parents’ management ability on disease” was affected by “tenacity” (β=0.061, P=0.004) and “strength” (β=0.944, P<0.001);“parental concern” was affected by children’s anxiety (β=0.078, P=0.041), and caregiver’s anxiety (β=0.990,P=0.041) and “strength” (β=0.019, P=0.044); “parental difficulty in disease management” was associated with “psychological resilience” (β=-0.098, P=0.004) and “tenacity” (β=-0.892, P<0.001); “parents’ energy expenditure on disease” was affected by “optimism” (β=0.874, P<0.001); the “parents’ mutual support” was affected by“depression” (β=-0.145, P<0.001), “strength” (β=0.088, P<0.001) and “optimism” (β=1.155, P<0.001).Conclusion: The psychological status of SCI children and their primary caregivers was a vital factor affecting family management of the illness.
